Table 4

Barriers to Caring for Patients With IDD

BarrierMean (95% CI)
Lack of knowledge about available resources to recommend3.22 (3.14–3.29)
Difficulty understanding the patient's level of functioning2.77 (2.70–2.84)
Difficulty communicating with a person with IDD2.69 (2.62–2.77)
The time it takes to see a patient with IDD2.62 (2.53–2.70)
Lack of ability to control difficult behaviors2.55 (2.46–2.64)
Lack of knowledge about childhood-onset conditions2.53 (2.45–2.61)
The amount of paperwork involved2.50 (2.41–2.59)
Difficulty obtaining details about care of their childhood-onset conditions2.49 (2.41–2.56)
Difficulty with thorough physical examination because of physical barriers2.43 (2.34–2.52)
Reliance on caregivers to provide medical history2.40 (2.31–2.48)
Patients with IDD have many other doctors (i.e., specialists) involved in their care2.34 (2.26–2.42)
Lack of comfort interacting with people with IDD1.98 (1.90–2.06)
Clinic/hospital level concerns about lower reimbursement potential for patients with IDD1.24 (1.18–1.30)
  • Abbreviation: IDD = intellectual and/or developmental disability.

  • Scale: 1 = not at all a barrier, 2 = a little bit of a barrier, 3 = somewhat of a barrier, 4 = very much a barrier.